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Our inspiration comes from a single source: the strength and courage of people living with neurodegenerative diseases and their families. While we are driven to one day end the suffering caused by these diseases, we want to help fulfill the need for community, support, and guidance at any stage of your journey.

*These resources are independent of Amylyx.

Compassionate Care ALS

Compassionate Care ALS supports people diagnosed with ALS, their families, communities and healthcare providers as they navigate the complexities, both physical and emotional, associated with the disease. CCALS offers an innovative approach to delivering support and services to clients, tailored to the needs of each individual and their support network.

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EUpALS

EUpALS unites the European ALS Associations, companies and academic partners, to create equal rights for all Europeans with ALS and to provide better access to research and information about ALS.

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Everything ALS

EverythingALS is a patient-focused non-profit, bringing technological innovations and data science to support efforts – from care to cure -- for people with ALS, by offering an open-data platform for direct engagement with patients, caregivers, advocates, and researchers.

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I AM ALS

I AM ALS is a patient-centric movement revolutionizing how to end disease. The nonprofit provides critical support and resources to people with ALS, caregivers and loved ones, and empowers advocates to raise awareness and lead the movement against ALS in driving the development of treatments and cures.

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International Alliance of ALS/MND Associations

The Alliance is a global network of ALS/MND associations informed by people living with ALS and caregivers for people living with ALS (PALS/CALS), that builds capability for its members and connects to external stakeholders.

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Les Turner ALS Foundation

The Les Turner ALS Foundation provides individualized care, local community support and hope through scientific research. The Les Turner ALS Center at Northwestern Medicine advances vital care and research in pursuit of life-enhancing treatments and a cure.

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Muscular Dystrophy Association

Muscular Dystrophy Association (MDA) is committed to transforming the lives of individuals living with muscular dystrophy, ALS and related neuromuscular disease through innovations in science and innovations in care.

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Our science

Progress is rarely the result of convention, which is why we’ve taken a different approach to understanding neurodegenerative diseases and the science that could help to slow their progression.

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Recent news

Read about the latest developments in our research, ongoing clinical trials, and what’s on the horizon for Amylyx.

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