Privacy Policy

Amylyx Pharmaceuticals, Inc., a Delaware corporation (hereinafter “Amylyx”) is committed to protecting your privacy.  Please read the following Privacy Policy (the “Privacy Policy”) for details concerning our policies related to the Web sites and applications that you may use in connection with interacting with us and reviewing our Web site. Throughout this Privacy Policy, the words “we,” “us,” and “our” refer to Amylyx and its directors, employees, and affiliates. By accessing or using our Web site at: (the “Site”) or any of our mobile applications (collectively with the Site, the “Platform”) on any computer, mobile phone, tablet, console or other device, you signify that you have read, understand and agree to be bound by this Privacy Policy. We may modify this Privacy Policy at any time. Your continued use of our Platform constitutes your acceptance of this Privacy Policy and any updates. If you do not agree to this Privacy Policy, please do not use our Platform.

Links to Other Web Sites

This Privacy Policy applies exclusively to our Platform and not to any Web sites which may be linked to our Platform.  The materials and Web sites referenced and/or linked from our Web site are provided for information purposes only. The linked sites are not under our control, and we do not assume any responsibility or liability for any communication or materials available at such linked sites. Any reference to a commercial or noncommercial product, process, service or company is not an endorsement or recommendation by Amylyx, nor a guarantee of the reliability of the information or product.

Collection of Your Personal Information

When using our Platform, you may be asked to provide certain personal information to us in order to use certain products or services available on the Site.  These may include: (a) signing up for a clinical trial; and/or (b) sending us an email message.  In connection with your use of our Platform, we may ask you to provide personal information, such as your e-mail address, name, home or work address, or telephone number.  The foregoing personally identifiable information is referred to herein as “Personal Information.”  We also may gather personal or non-personal information in addition to the foregoing in the future.

We may also gather certain information automatically that is stored in log files, which does not identify you. For example, we may use Web site analytics tools on our Site to retrieve information from your browser, including the Web site you came from, the search engine and the keywords you used to find our Site, the pages you view within our Site, your browser add-ons, and your browser’s width and height. We may also use technologies, such as cookies and web beacons (described below), to collect information about the pages you view, the links you click and other actions you take on our Site. Additionally, we collect certain standard information that your browser sends to every Web site you visit, such as your IP address, browser type and language, access times and referring Web site addresses.

We may combine information you give us with other information from our sources, transactions and communications. This may include, but is not limited to, information from direct mail, events, products and applications, or other interactions you have with Amylyx.  We may also combine that information with data that is publicly available and data from third parties.

Use of Your Personal Information

Amylyx collects and uses your Personal Information to operate and improve its Platform, its products and services.  These uses may include providing you with more effective service; making the Platform or services easier to use; performing research and analysis aimed at improving our products, services, communications and technologies; and displaying content that is customized to your interests and preferences.

We also use your Personal Information to communicate with you. We may send certain service communications such as information on technical service issues, information on our products and services and its functionality and security announcements.

Amylyx may also use your Personal Information to inform you of other activities of Amylyx and its affiliates and partners.

Sharing Information with Third Parties

Amylyx does not rent, lease, sell or exchange its contact lists with other organizations.

Amylyx may, however, share data with trusted partners to help perform statistical analysis, send you email or postal mail, host our Site, respond to communications you send to us, or provide customer support. All such third parties are prohibited from using your Personal Information except to provide these services to Amylyx, and they are required to maintain the confidentiality of your Personal Information.

Amylyx may disclose your personal information, without notice, if required to do so by law or in the good faith that such action is necessary to: (a) conform to the edicts of the law or comply with legal process served on Amylyx; (b) protect and defend the rights or property of Amylyx; (c) act under exigent circumstances to protect the personal safety of users of the Site, or the public; and/or (d) assist in fraud protection or investigation.

Security of Your Personal Information

Amylyx secures your personal information from unauthorized access, use, or disclosure. We use a variety of security technologies and procedures to help protect your Personal Information from unauthorized access, use, or disclosure. However, like other companies, Amylyx cannot guarantee the security or confidentiality of the Personal Information you provide to us.  As a result, while we strive to protect your Personal Information, you acknowledge that: (a) there are security and privacy limitations inherent in the Internet which are beyond our control; and (b) security, integrity, and privacy of any and all information and data exchanged between you and us through our Platform cannot be guaranteed.

How Long We Keep Your Personal Information

We retain your Personal Information in accordance with our business needs and for legal, regulatory, audit and tax requirements. After this period the Personal Information relating to your use of our Platform will be deleted.  Any Personal Information which you have provided to us for receiving information, newsletters and event invitations will be kept until you notify us that you no longer wish to receive this information. 

Use of Cookies

Our Site may use “cookies” to enable or help you to sign in to our services and to help personalize your online experience. A cookie is a small text file that is placed on your hard disk by a Web page server. Cookies contain information that can later be read by a Web server in the domain that issued the cookie to you. Cookies cannot be used to run programs or deliver viruses to your computer.

One of the primary purposes of cookies is to store your preferences and other information on your computer in order to save you time by eliminating the need to repeatedly enter the same information and to display your personalized content and appropriate advertising on your later visits to these sites. Our Site also uses cookies as described in the Collection of your Personal Information section of this Privacy Policy.

You may have the ability to accept or decline cookies. Most Web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer.

If you choose to accept cookies, your browser may give you the ability to later delete cookies that you have accepted. If you choose to delete cookies, any settings and preferences controlled by those cookies will be deleted and may need to be recreated.

Use of Web Beacons

The Site may contain electronic images known as Web beacons – sometimes called single-pixel gifs – that may be used to assist in delivering cookies and allow us to count users who have visited pages on the Site. We may also include Web beacons in e-mail messages in order to determine whether messages have been opened and acted upon.

We may also employ Web beacons from third parties in order to help us compile aggregated statistics regarding the effectiveness of our fundraising campaigns or other operation of our Site.

Finally, we may work with other companies that place links or other content on our Site that include Web beacons on their Web sites in order to allow us to develop statistics on how often clicking on a third-party’s content on our Site results in action on the third-party’s Web site.

Children Under Thirteen

Amylyx does not knowingly collect Personal Information from children under the age of thirteen.  If you are under the age of thirteen, you must ask your parent or guardian for permission to use this Site.

Email Communications

From time to time, Amylyx may contact you via email for the purposes of responding to your communications to us and/or providing announcements, updates, alerts, confirmations, surveys, and/or general communication, if you have given us your email address.

If you would like to stop receiving email from Amylyx, you may opt-out of such communications by clicking “Unsubscribe from this list” at the bottom of the email.

You have the right:

  • not to receive discriminatory treatment by Amylyx for the exercise of privacy rights conferred by the California Consumer Privacy Act (CCPA) or General Data Protection Regulation (GDPR);
  • to change the Personal Information you have provided to us;
  • to request that Amylyx delete Personal Information that we have collected about you or that you have submitted to us;
  • to designate an authorized agent to make a request under CCPA or GDPR on your behalf;
  • to request that Amylyx not share your Personal Information with others;
  • to request that Amylyx not send you information about products and services.

Transfer/Suppression/Deletion of Personal Information

If you would like Amylyx to disclose, delete, transfer, suppress sharing, or stop sending you information please contact us by writing to us via mail or e-mail at our address listed below under the “Contact Information” section of this Privacy Policy.

In your request, please make clear what Personal Information you would like to have transferred, suppressed, or deleted or otherwise let us know what limitations you would like to put on our use of your Personal Information.  For your protection, we may only implement requests with respect to the Personal Information associated with the specific email address that you use to send us your request, and we may need to verify your identity before implementing your request.  We will comply with your request as soon as reasonably practicable. 

You may use an authorized agent to submit a request on your behalf if you provide the authorized agent with written permission to do so.  Before complying with a request from an agent, we may require that you verify your own identity directly with us.  We may deny a request from an agent that does not submit proof that they have been authorized by you to act on your behalf.

Please note that we may need to retain certain information for recordkeeping purposes.  There may also be residual information that will remain within our databases and other records, which will not be removed.

Jurisdiction and Cross-Border Transfer

Our Site is controlled and operated by us from the United States and is not intended to subject us to the laws or jurisdiction of any state, country or territory other than that of the United States.  Your Personal Information may be stored and processed in any country where we have facilities or in which we engage service providers, and by using our Site you consent to the transfer of information to countries outside of your country of residence, including the United States, which may have data protection rules that are different from those of your country.  In certain circumstances, courts, law enforcement agencies, regulatory agencies or security authorities in those other countries may be entitled to access your Personal Information.

Changes to This Statement

Amylyx reserves the right to change this Privacy Policy from time to time. Your continued use of our Platform after we have made such modifications will constitute your: (a) acknowledgment of the modified Privacy Policy; and (b) agreement to abide and be bound by our modified Privacy Policy.

Contact Information

Amylyx welcomes your questions or comments regarding this Privacy Policy. If you believe that Amylyx has not adhered to this Privacy Policy, please contact Amylyx at:

Amylyx Pharmaceuticals, Inc.

43 Thorndike St.

Cambridge MA 02141

Accessibility Policy

Amylyx is committed to making this Privacy Policy accessible to all people.  If you encounter any difficulty accessing the information in this Privacy Policy or require access to it in an alternative format, please send us an e-mail or write us at our contact information set forth above in the “Contact Information” section of this Privacy Policy.